HeC - Public deliverables

D1.1 Quality Assurance Guidelines by Alessandro Sattanino — last modified 28-05-2007 10:49

This document, delivered to the EC on 1st April 2006, is designed to give guidance on quality planning, achieving, testing and refining in the different areas of the project.

D1.4 Project Presentation by Alessandro Sattanino — last modified 28-05-2007 10:50

A 2-pages description of Health-e-Child project: its focus and main objectives.

D 3.1 Report on informed consent for parents & patients by Alessandro Sattanino — last modified 28-05-2007 10:50

The Health-e-Child project includes genetic and molecular investigations. A specific informed consent in accordance with EC recommendations on the ethical, legal and social implication of genetic testing is required to collect and store biological sample to perform genetic examination.

D9.1 Report on Diagnostic Coding System and Data Collection Protocols by Alessandro Sattanino — last modified 28-05-2007 10:51

Case Report Forms dedicated to collecting data of patients that are going to be inserted in the HeC Project have been created for each of the three disease groups (Cardiomyopathies, Brain Tumors and Rheumatology). These CRFs cover different aspects (clinical, laboratory, genetic, etc…) from the first contact with the patient (i.e. baseline visit) and continue even in successive follow-up visits according to each case needs.

D15.1 Documentation of training requirements specifications, contents standards and assessment report, for the 1st course by Antonella TREZZANI — last modified 04-09-2007 17:00

 

D16.2 Dissemination materials by Antonella TREZZANI — last modified 04-09-2007 17:01

 

D11.2 First-generation cardiac, JIA and brain models by Antonella TREZZANI — last modified 04-09-2007 17:00

 

D16.1 Dissemination Strategy Plan by Antonella TREZZANI — last modified 19-10-2007 12:16

This deliverable outlines the elements of a dissemination strategy for Health-e-Child and will be updated yearly as the project evolves.

D1.5 Self Assessment Plan by Antonella TREZZANI — last modified 29-02-2008 12:12

This document analyses the activities in each work package, evaluating the objectives of each task and the related measurement of achievable success/unsuccess. It will be updated during the course of the project.

D3.2 Annual Report on Ethical and Legal issues by Antonella TREZZANI — last modified 29-02-2008 12:16

The HeC project Child involves several ethically-sensitive areas. An annual report on the Ethical, Legal and Regulatory issues that have been identified and how they have been addressed will be prepared at the end of each reporting period.

D1.3 Annual Report - Executive Summaries by Antonella TREZZANI — last modified 09-05-2008 13:02

This folder contains the Publishabe Executive Summaries of HEC Periodic Activity Reports

D9.2 Report on the data collection status by Antonella TREZZANI — last modified 21-05-2008 11:48

In this folder you will find the reports on the Data collection status and databse population. The first report was delivered at month 18 and subsequently updated every 6 months.

D 15.2 Report on HeC 2nd training Course by Antonella TREZZANI — last modified 02-09-2008 17:40